Tuesday, November 11, 2008

Where do I begin?

Today has been a whirlwind of a day. I am laying here with my princess in the hospital bed where I am amazed at her strength. To kind of give an idea of how things have gone today I will briefly try to document this time. I am really tired, but feel that I need to write these things down and keep people updated.

First of all, thank you everyone for your thoughts and prayers. We are walking testaments that prayers are felt and that the Lord has a plan for us. This has been a difficult year for us, but this too is something that we will take it one step at a time, and just try to find what it is that we are supposed to learn.

Well, when we got to the doctor this morning the first thing they needed her to do was pee in a "hat". It was a little thing that goes over the potty so she doesn't have to hold a cup. She was told that if she could give the nurse all that she needed for the test they wouldn't need to poke her. Unfortunately though the test came back as +3 (0 is normal) so the nurse had to poke her anyway. We were told that they needed to find out what her levels are but most likely she did have type 1 diabetes.

When the doctor came in and said there her blood sugar levels where higher than what they can test it at (well over 300. 60 something to 115 is normal) he said that she definitely has it. He had contacted the Endocrinologist and that he needed us to head up to Primary Children's Medical Center and that we need to get there within the next hour or so.

So the craziness began. We packed and worked out some details for the boys all the while she played happily with her cousins until we could be all ready to go. Her daddy and grandpa gave her a blessing, and we where off.

Once we got here they had to test her levels again (yes another poke) and her blood sugar levels where higher than 500. Let me take a minute to point out how incredibly lucky she is. Most people when their levels are this high they are close to a coma. Some how her body was working with it and her little personality hadn't been effected by it. We caught it at the perfect time before she got to that point. She is also very lucky that her grandpa has type 2 diabetes (for all those who don't know, that type 2 is not at all related to type 1. They are totally different so there for not hereditary). He came up from Las Vegas and came to the hospital to be with her. This helped to feel normal and that she is not alone. What a blessing that was to have him here for her tonight.

They gave her her first dose of insulin and sent us up to her room. They where doing more test and asking more questions and she just climbed up on my lap. Not hardly moving or talking. At first I thought this was because she was scared. Then I felt that it was something more. I was telling them that she was feeling sick. They thought that it was because it was late and she hadn't had dinner. They actually ended up testing her levels again and it was WAY too low at 50. Quite the change. They gave her some more insulin and dinner and she was much better.

This is why she is here for 4 days. The roller coaster of getting it leveled out is going to be rough. We are also here for what they call Diabetes Boot Camp. She will live with this forever and could get worse someday if not taken care of. We are here to learn how to live with this. How to monitor her and learn how to give her what she needs. This will change all of our families lives. Maybe with the new eating habits I will loose the extra weight that I have been wanting to loose forever now.

I wanted to end with a quote from our doctor Dr. Buchanan (aka the VERY best doctor in the world) He said "We need to not adjust her life to fit the treatment, but rather adjust the treatment to fit her life." I loved that! It gives me hope!

Oh, one more thing. We still don't know how this is all going to work out without having insurance, but it will somehow. We have already seen the blessing and the promise that we are doing the right thing regardless.

P.S. If any of her friends want to visit, she would love it!

18 comments:

RaeLynn said...

Shannon--I'm so sorry to hear about your little princess. My nephew just got home from Primary Childrens on Sunday for diabetes too! He is 3 years old and was diagnosed over the weekend. I just talked to my bro and sister in law and the boot camp was very informative and it made them feel a lot more confident about being able to make the transition that is coming. It definitely will be a huge challenge, especially at first with all the shots, and counting carbs and all that--but it will eventually get easier. I'll keep you guys in my prayers. We totally understand the health insurance thing. Stupid companies that won't offer insurance at a reasonable rate! Anyway, I'm rambling--but I hope you know you're not alone! You can do this!

Becky said...

Oh, Shannon, my heart is aching for you right now...in that mommy aching for a child kind of a way. I'm so glad that you listened to your mommy instinct and took action to figure this out. GOOD FOR YOU!!!!! It sounds like God placed you in the hands of some incredible, fast moving doctors. YOUR faith and YOUR FATHER will get you through this. HE doesn't promise us an easy path, but HE does promise He'll always be there. Your family will be in my prayers as you transition into the new way of life. Blessings, Love and Peace....Bec

*Amy* said...

Hey Shannon! I'm glad you were able to figure out what was wrong and I hope she gets feeling better soon! My thoughts and prayers are with you and your family!

Robin and Stephenie said...

I think you are at the best place for helping a child get better. We love primary childrens. It is amazing how challenges in our lives bring our families closer together. Our prayers are with you and your family.

Holly | Reed Photographic said...

I'm so glad she's getting treated - and at Primary's. We have been very happy with all our experiences there - though it is very tough to be going through any kind of illness with your kids.

AshliO said...

Hi Shannon, I just dropped in to check on you and your daughter. I am very glad you found out what was going on and are getting her the proper treatment. I pray this goes much better than expected. Hugs to you!

amy said...

A good, smart Mom who listens to the Holy Ghost and moves forward to protect their child even when its hard or scary is the biggest blessing ANY child could hope for. Good job Shannon! It'll be okay, it'll just be a little different now. You can do it!!!

Becky said...

We always knew your little Princess was extra sweet! I'll just have to bring you cookies made with Splenda from now on. Hang in there!

Glenn Amber Evans said...

Oh Shannon i just heard!! I'm so sorry. IF you need anything like watching the boys or ANYTHING let me know i would love to help out. I love you and i know trials come up for reasons but i know you will be strong.
Love amber

Suzanne said...

I'm so glad that she is being treated. You guys can do it!! If I were there, I'd come say hi!!

Jessup Jive said...

Shannon,
I'm so glad that you went with your instincts. "Mother knows best" is so true. I'm glad that you were able to figure this out and get it figured out. Lance and I are praying for her and your family. We love you so much.

Melissa said...

I am so sorry to hear this news. But so inspired by you following the spirit. What a wonderful mommy you are. On a completely unrelated note Hey, now I am paranoid and setting my blog to private. :) Send me your email address at mommymeliss@gmail.com and I'll invite you.

Jennifer said...

I'm sorry to hear about your little sweet (literally) girl! But I am amazed at how well you listened to the spirit and followed it's guidance without fail. I hope all goes well with her treatment and that you will be able to go through a smooth transition. Good luck to you!

Kim said...

Sweet girl. Shannon, so sorry, this seems like the icing on the 2008 cake huh? You are a trooper and a wonderful mother. Hopefully little miss an get feeling better soon, and things will go smoothly. My heart is with you. Love much.

Becky and Bryce said...

Shannon, So sorry to here about your sweet baby girl!!! It makes me so sad, but I'm so thankful we live in this time so that Dr. can treat her and help her. I feel like I'm always thankful for that. You are such a great Mommy and I know you'll figure all this out. Thanks for sharing, our thoughts and prayers are with you.

natterbee said...

Shannon - I'm so glad you posted this difficult story. My newest little baby was in ICU for 8 days in September and it is heart-wrenching to see your child go through so much. It makes you wonder how they can bear it sometimes. Continue following the promptings of the Spirit and you'll know just what you need to do to support your Little Princess in the days, months and years to come. You're doing great and she's lucky to have you.

You're in my prayers.

Kat said...

You are in my prayers!!!

The Parry Family said...

I'm sorry to hear the news about your little girl. Diabetes runs in both my husband and my family. My little boy(2yrs old) goes to the bathroom(pee) all the time, like he could go 3 times within a 30-40min period, is that a sign or is it the drinking thats the concern. I thought it was weird. Anyway your in our prayers and I hope things will be ok for your cute little family. Good luck and be positive.