Today has been a whirlwind of a day. I am laying here with my princess in the hospital bed where I am amazed at her strength. To kind of give an idea of how things have gone today I will briefly try to document this time. I am really tired, but feel that I need to write these things down and keep people updated.
First of all, thank you everyone for your thoughts and prayers. We are walking testaments that prayers are felt and that the Lord has a plan for us. This has been a difficult year for us, but this too is something that we will take it one step at a time, and just try to find what it is that we are supposed to learn.
Well, when we got to the doctor this morning the first thing they needed her to do was pee in a "hat". It was a little thing that goes over the potty so she doesn't have to hold a cup. She was told that if she could give the nurse all that she needed for the test they wouldn't need to poke her. Unfortunately though the test came back as +3 (0 is normal) so the nurse had to poke her anyway. We were told that they needed to find out what her levels are but most likely she did have type 1 diabetes.
When the doctor came in and said there her blood sugar levels where higher than what they can test it at (well over 300. 60 something to 115 is normal) he said that she definitely has it. He had contacted the Endocrinologist and that he needed us to head up to Primary Children's Medical Center and that we need to get there within the next hour or so.
So the craziness began. We packed and worked out some details for the boys all the while she played happily with her cousins until we could be all ready to go. Her daddy and grandpa gave her a blessing, and we where off.
Once we got here they had to test her levels again (yes another poke) and her blood sugar levels where higher than 500. Let me take a minute to point out how incredibly lucky she is. Most people when their levels are this high they are close to a coma. Some how her body was working with it and her little personality hadn't been effected by it. We caught it at the perfect time before she got to that point. She is also very lucky that her grandpa has type 2 diabetes (for all those who don't know, that type 2 is not at all related to type 1. They are totally different so there for not hereditary). He came up from Las Vegas and came to the hospital to be with her. This helped to feel normal and that she is not alone. What a blessing that was to have him here for her tonight.
They gave her her first dose of insulin and sent us up to her room. They where doing more test and asking more questions and she just climbed up on my lap. Not hardly moving or talking. At first I thought this was because she was scared. Then I felt that it was something more. I was telling them that she was feeling sick. They thought that it was because it was late and she hadn't had dinner. They actually ended up testing her levels again and it was WAY too low at 50. Quite the change. They gave her some more insulin and dinner and she was much better.
This is why she is here for 4 days. The roller coaster of getting it leveled out is going to be rough. We are also here for what they call Diabetes Boot Camp. She will live with this forever and could get worse someday if not taken care of. We are here to learn how to live with this. How to monitor her and learn how to give her what she needs. This will change all of our families lives. Maybe with the new eating habits I will loose the extra weight that I have been wanting to loose forever now.
I wanted to end with a quote from our doctor Dr. Buchanan (aka the VERY best doctor in the world) He said "We need to not adjust her life to fit the treatment, but rather adjust the treatment to fit her life." I loved that! It gives me hope!
Oh, one more thing. We still don't know how this is all going to work out without having insurance, but it will somehow. We have already seen the blessing and the promise that we are doing the right thing regardless.
P.S. If any of her friends want to visit, she would love it!