I am feeling better now. With a little dose of last night's American Idol, some Dr. Pepper (thank again Cari!) and lots of hugs from the kids the day seemed to settle down a bit.
I wanted to share some information about the Princess' Endocrinologist appointment today. I had a little list of things that I felt we needed to talk to him about (crazy that I had a list because we still talk to him every Thursday afternoon). Nothing too major but enough to seem important.
The poor girl has started wetting the bed again. This is due to high blood sugars during the night. But she was going to bed normal then waking up high. I figured her Lantus dose needed to be changed again and I was right. The doctor changed it to 1/2 of a unit (such a small amount I know! It was 1/4 of a unit) This is really hard to watch. For many reasons but one being that she can't control it. She gets so embarrassed. I wonder how high she had been going before she woke up. Maybe I need to be better about getting up and testing her in the middle of the night. I do occasionally, but not every night. I wonder what percentage of parents that have diabetic children get up and test in the night? Guess I need to be one of them.
She had also been going low before lunch. Now I figured this could be due to the correction that is given for her high at breakfast. Or it could be that she needed less insulin for her breakfast ratio. She was getting 1/4 of unit for every 5 carbs. The doctor changed it to 1/4 unit for every 6. Now every meal is different. Breakfast 1/4 to every 6 carbs. Lunch 1/4 unit for every 5 carbs. And dinner 1/4 unit for every 4 carbs. If it weren't for my white board on my fridge and my calculator I don't know how I would ever survive! With the change in Lantus and the change in carb ratio I feel I am going to have to watch her closely. I am afraid that the two combined might cause some problems. Good thing I will talk to her doctor on Thursday again if that happens.
One other major thing on our minds lately is getting her an insulin pump. We had been given information about it at our first appointment a few months ago, but knew they were very expensive. I had told Dr. Chad that we wanted to talk about it today to see if we could get one for lots less while we had Medicaid. So what do you know when we showed up today he had a large stuffed frog for her that had a tag around his neck that said Animus. (the kind of pump that he is recommending) He even had pictures of a PINK pump that she might be able to get. He knows how to steal the heart of a 4 year old! He answered lots of my questions about it while she played. I really didn't think she was paying much attention until she started asking Dr. Chad questions herself. Will it hurt? Will I get less pokes? Can I really get a pink one? I was surprised to see her thinking so much about it. She was getting excited too! I will be calling the pump rep tomorrow to see what we can do and how much it will cost to get the ball rolling on this. I bet it will make life much easier!
So to report she is doing well. Her A1C (average glucose numbers over the last 3 months) is 8.3%. Not the greatest, but coming down from diagnosis. She went through a pretty big growth spurt this last month (should have known when she was eating double the amount of food as she usually does.) She is a happy kid! She is still doing so well with all this.
Even with doing so awesome you should have seen her eyes light up when she found out tonight that Nick from the Jonas Brother's has diabetes JUST LIKE HER! Oh those small things again! Can't believe how much they make a difference!